First off, my thank to all of you for the support, kind words and good wishes. All are much appreciated and it’s helpful to know folks care. I intended to write about what’s been going on sooner, but best laid plans of mice and men and all that. Which is to say, things didn't quite go as we hoped on surgery day. Not the best news, but not the worst either. During the laparoscopy prior to the procedure, the surgeon found a couple of spots where the cancer had metastasized. They are very, very small and sitting on top of the liver and intestines, rather than dug in. However, any sign of metastasis is enough to cancel the surgery. Basically, if it's escaped, then the surgery gains nothing and would delay getting chemo started.
Sooo, we've been scrambling to get back to square one. Chemo. There was a lot to get done with the change in plans. New tests, meetings, things to learn about. Lots of appointments. Her oncologist is very well respected, and there's really only one standard chemo for pancreatic cancer. Gemcitibine [sp?]. There is a phase II study going of a new drug that adds a second drug to the standard treatment. Mom is in the study, but as it turned out, she was randomized into the control arm of the study, which means she only gets the standard treatment and not the additional drug. Though that could theoretically change down the road a bit.
Friday was her first chemo. The Gemcitibine is supposed to be easier on the body than a lot of things. Less nausea, fatigue, hair loss, etc. She’ll presumably be taking it on a six month cycle–once a week for three weeks, then a week off with a CT scan every two months. She felt good today, but supposedly the worst point is at about the three week point of each cycle, so we shall see how it goes. One good thing about being in the study. Even though not on the new drug, she gets additional support and testing, so they will be tracking her even more closely than normal.
We also saw the surgeon for the followup checkup and there is some chance that if she were to respond well to the chemo, surgery would be a possibility down the road. So no doors are truly shut.
So, for the moment, we're just working on getting her as healthy as possible and keeping her that way. Hvae her on a really healthy diet, supplements, getting more exercise, etc. Took a few days to get through the aftermath of the surgery-that-wasn't, since they went ahead and put in a new biliary stent while she was in the hospital...second surgery, with all the same prep requirements...so she basically didn't eat anything for about five days. Which isn't ideal. Shelost several pounds through it all. We're getting her weight and strength back up though.
We’re also trying to hold onto sanity in the midst of all this. Had some rough days, but then got things back together. Can’t afford to let it get to me or I’ll wind up in a corner, sucking my thumb. Pink Panther movies and old Addams Family eps seem to help. Something to be said for laughter therapy.
It’s hard and scary as hell sometimes, but right now, she’s doing remarkably well. Says she feels the best she has since last August before the biliary blockage problems started. So, we keep muddling through. Not much else to be done.
Meanwhile, didn’t do much writing there for awhile, but am trying to get things moving again. It’s good for me. I’m a lot more mentally healthy when writing. Hoping to post a new chapter soon
So that’s pretty much the story. Hopefully things will go smoothly and I’ll be posting again soon.
Take care all.